Global quest to map rare brain Disorder's journey
NCT ID NCT07167732
Summary
This study aims to understand how CTNNB1 syndrome, a rare genetic condition affecting brain development, changes over a person's lifetime. Researchers will follow 250 children and adults with the condition for five years, tracking their physical, mental, and social development. The goal is to create a detailed picture of the condition to improve care and help design future treatment trials.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Sydney Children's Hospital
NOT_YET_RECRUITINGSydney, Australia
Contact
Contact Email: •••••@•••••
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University Medical Centre Ljubljana
RECRUITINGLjubljana, 1000, Slovenia
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact
Conditions
Explore the condition pages connected to this study.