Massive study tracks 500 patients to unlock secrets of rare lung disease
NCT ID NCT07254078
Summary
This study is creating a national registry to track 500 Russian patients with chronic thromboembolic pulmonary hypertension (CTEPH), a rare lung condition. Researchers will collect real-world medical data to understand which factors—like treatments, symptoms, and patient characteristics—most influence long-term survival and health outcomes. The goal is to improve future care by identifying what works best for patients in everyday clinical practice.
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Contacts and locations
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Locations
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National Medical Research Center of Cardiology after academician E.I. Chazov
RECRUITINGMoscow, Russia
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Conditions
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