Uncertainty and hope: study explores how parents of undiagnosed children cope

NCT ID NCT01905865

First seen Oct 31, 2025 · Last updated May 14, 2026 · Updated 28 times

Summary

This study looked at how parents of children with undiagnosed medical conditions handle uncertainty. Researchers surveyed 168 parents to understand how their thoughts and feelings about the unknown affect their ability to cope. The goal was to learn which factors, like optimism or tolerance for uncertainty, help parents adapt.

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Contacts and locations

Locations

  • National Human Genome Research Institute (NHGRI), 9000 Rockville Pike

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.