Massive new registry aims to unlock secrets of rare blood disorder
NCT ID NCT02964494
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is a registry for people with Congenital Dyserythropoietic Anemia (CDA), a rare blood disorder. Researchers will collect medical information and blood or bone marrow samples over many years to better understand how the disease progresses, its causes, and how it affects patients. The goal is to learn more about CDA to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-••••
Locations
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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