Researchers ask: what do patients know about their rare eye disease?
NCT ID NCT05390801
Summary
This study aims to better understand the eye and body symptoms experienced by people with congenital aniridia, a rare genetic condition that affects eye development. Researchers will give a one-time survey to 100 patients (or their parents) to learn about their symptoms and assess their knowledge of their own condition. The goal is to gather information to improve future care and patient education for this complex disease.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hôpital Necker-Enfants Malades
RECRUITINGParis, 75015, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.