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Global effort launches to track rare blood disorder

NCT ID NCT05791708

Recruiting now Knowledge-focused Sponsor: RECORDATI GROUP Source: ClinicalTrials.gov ↗

Summary

This study is creating a global registry to collect real-world information about people with Cold Agglutinin Disease, a rare autoimmune blood disorder. Researchers will follow 400 patients over time to understand how the disease progresses, what treatments work best, and how it affects patients' daily lives. The study will also track a smaller group of patients taking a specific medication called sutimlimab to learn more about its long-term effects.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Brody School of Medicine at East Carolina University Site Number : 1203

    RECRUITING

    Greenville, North Carolina, 27834, United States

  • Center for Blood Disorders Site Number : 1214

    RECRUITING

    New York, New York, 10021, United States

  • Cleveland Clinic Foundation Site Number : 1207

    RECRUITING

    Cleveland, Ohio, 44195, United States

  • Hematology Oncology Associates, PC Site Number : 1211

    RECRUITING

    Medford, Oregon, 97504, United States

  • Henry Ford Hospital Site Number : 1232

    RECRUITING

    Detroit, Michigan, 48202, United States

  • Investigational Site Number : 2203

    RECRUITING

    Fukushima, Fukushima, 960-1295, Japan

  • Investigational Site Number : 2204

    RECRUITING

    Himeji-shi, Hyōgo, 670-0063, Japan

  • Investigational Site Number : 3101

    RECRUITING

    Salzburg, 5020, Austria

  • Investigational Site Number : 3102

    RECRUITING

    Vienna, 1090, Austria

  • Investigational Site Number : 3201

    RECRUITING

    Créteil, 94010, France

  • Investigational Site Number : 3202

    RECRUITING

    Quimper, 2900, France

  • Investigational Site Number : 3203

    RECRUITING

    Pessac, 33600, France

  • Investigational Site Number : 3204

    RECRUITING

    Cesson-Sévigné, 35510, France

  • Investigational Site Number : 3205

    RECRUITING

    Saint-Priest-en-Jarez, 42270, France

  • Investigational Site Number : 3206

    RECRUITING

    Corbeil-Essonnes, 91100, France

  • Investigational Site Number : 3211

    RECRUITING

    Chalon-sur-Saône, 71100, France

  • Investigational Site Number : 3213

    RECRUITING

    Pau, 64000, France

  • Investigational Site Number : 3214

    RECRUITING

    Angers, 49933, France

  • Investigational Site Number : 3216

    RECRUITING

    Poitiers, 86021, France

  • Investigational Site Number : 3217

    RECRUITING

    Paris, 75013, France

  • Investigational Site Number : 3218

    RECRUITING

    Toulouse, 31059, France

  • Investigational Site Number : 3219

    RECRUITING

    Dijon, 21079, France

  • Investigational Site Number : 3220

    RECRUITING

    Rennes, 35033, France

  • Investigational Site Number : 3221

    RECRUITING

    Epagny-Metz-Tessy, 74370, France

  • Investigational Site Number : 3222

    RECRUITING

    Amiens, 80054, France

  • Investigational Site Number : 3301

    RECRUITING

    Essen, 45147, Germany

  • Investigational Site Number : 3302

    RECRUITING

    Landshut, 84036, Germany

  • Investigational Site Number : 3306

    RECRUITING

    Hanover, 30161, Germany

  • Investigational Site Number : 3402

    RECRUITING

    Reggio Calabria, 89133, Italy

  • Investigational Site Number : 3403

    RECRUITING

    Novara, 28100, Italy

  • Investigational Site Number : 3404

    RECRUITING

    Roma, 00161, Italy

  • Investigational Site Number : 3405

    RECRUITING

    Terni, 05100, Italy

  • Investigational Site Number : 3410

    RECRUITING

    Campobasso, 86100, Italy

  • Investigational Site Number : 3411

    RECRUITING

    Palermo, 90146, Italy

  • Investigational Site Number : 3412

    RECRUITING

    Ravenna, 48121, Italy

  • Investigational Site Number : 3413

    RECRUITING

    Brescia, Lombardy, 25123, Italy

  • Investigational Site Number : 3415

    RECRUITING

    Pavia, 27100, Italy

  • Investigational Site Number : 3601

    RECRUITING

    Newcastle upon Tyne, North Tyneside, NE29 8NH, United Kingdom

  • Investigational Site Number : 3602

    RECRUITING

    Salford, Manchester, M6 8HD, United Kingdom

  • Investigational Site Number : 3603

    RECRUITING

    Truro, Cornwall, TR13LJ, United Kingdom

  • Investigational Site Number : 3605

    RECRUITING

    London, London, City of, NW1 2PG, United Kingdom

  • Investigational Site Number : 3606

    RECRUITING

    Taunton, Somerset, TA1 5DA, United Kingdom

  • Investigational Site Number : 3607

    RECRUITING

    Liverpool, L7 8XP, United Kingdom

  • Investigational Site Number : 3608

    RECRUITING

    Gillingham, Kent, ME75NY, United Kingdom

  • Investigational Site Number : 3611

    RECRUITING

    Oxford, Oxfordshire, OX3 7LE, United Kingdom

  • Investigational Site Number : 3612

    RECRUITING

    Leeds, LS9 7TF, United Kingdom

  • Investigational Site Number : 3613

    RECRUITING

    Middlesbrough, North Yorkshire, TS4 3BW, United Kingdom

  • Investigational Site Number : 3617

    RECRUITING

    Carlisle, Cumbria, CA2 7HY, United Kingdom

  • Investigational Site Number : 3618

    RECRUITING

    Birmingham, B15 2GW, United Kingdom

  • Investigational Site Number : 3620

    RECRUITING

    Harrow, HA1 3UJ, United Kingdom

  • Investigational Site Number : 3621

    RECRUITING

    London, E1 2ES, United Kingdom

  • Investigational Site Number : 3623

    RECRUITING

    Airdrie, North Lanarkshire, ML60JS, United Kingdom

  • Investigational Site Number : 3701

    RECRUITING

    Barcelona, Barcelona [Barcelona], 8036, Spain

  • Investigational Site Number : 3712

    RECRUITING

    Madrid, 28034, Spain

  • MedStar Georgetown University Hospital / Lombardi Comprehensive Cancer Center Site Number : 1208

    RECRUITING

    Washington D.C., District of Columbia, 20007, United States

  • Mission Hope Medical Oncology Site Number : 1241

    RECRUITING

    Santa Maria, California, 93454, United States

  • Northwell Health-Monter Cancer Center-North Shore University Hospital and Steven and Alexandra Cohen Children's Medical Center of New York (Schneider Children's Hospital)-North Shore Long Island Jewis Site Number : 1231

    RECRUITING

    Lake Success, New York, 11042, United States

  • Orchard Heathcare Research Inc. Site Number : 1202

    RECRUITING

    Skokie, Illinois, 60077, United States

  • Piedmont Cancer Institute, P.C Site Number : 1226

    RECRUITING

    Atlanta, Georgia, 30290, United States

  • Reliant Medical Group Site Number : 1205

    RECRUITING

    Worcester, Massachusetts, 01608, United States

  • SLO Oncology and Hematology Site Number : 1235

    RECRUITING

    San Luis Obispo, California, 93401, United States

  • SUNY Upstate Medical University Site Number : 1221

    RECRUITING

    Syracuse, New York, 13210, United States

  • Siouxland Regional Cancer Center dba June E. Nylen Cancer Center Site Number : 1220

    RECRUITING

    Sioux City, Iowa, 51101, United States

  • The Ohio State University Site Number : 1236

    RECRUITING

    Columbus, Ohio, 43210, United States

  • UT Medical Center Cancer Institute Site Number : 1237

    RECRUITING

    Knoxville, Tennessee, 37920, United States

  • University of Alabama at Birmingham Site Number : 1230

    RECRUITING

    Birmingham, Alabama, 35205, United States

  • University of Pittsburgh Medical Center-UPMC Hillman Cancer Center Site Number : 1210

    RECRUITING

    Pittsburgh, Pennsylvania, 15232, United States

  • University of Washingtion Seattle Cancer Care Alliance Site Number : 1238

    RECRUITING

    Seattle, Washington, 98109, United States

Conditions

Explore the condition pages connected to this study.

COLD AGGLUTININ DISEASE (CAD) COLD AGGLUTININ SYNDROME (CAS)