New registry sheds light on rare blood disorder

NCT ID NCT05791708

Ongoing Knowledge-focused Sponsor: RECORDATI GROUP Source: ClinicalTrials.gov ↗

First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 30 times

Summary

This study is a registry that collects information from about 429 adults with cold agglutinin disease (CAD) or cold agglutinin syndrome (CAS), a rare condition where the immune system attacks red blood cells in cold temperatures. Researchers will track symptoms, treatments, complications, and quality of life over time to better understand the disease and how it is managed in real life. No new treatments are being tested; participants simply provide data during regular care.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Locations

Brody School of Medicine at East Carolina University Site Number : 1203

Greenville, North Carolina, 27834, United States
Center for Blood Disorders Site Number : 1214

New York, New York, 10021, United States
Cleveland Clinic Foundation Site Number : 1207

Cleveland, Ohio, 44195, United States
Hematology Oncology Associates, PC Site Number : 1211

Medford, Oregon, 97504, United States
Henry Ford Hospital Site Number : 1232

Detroit, Michigan, 48202, United States
Investigational Site Number : 2203

Fukushima, Fukushima, 960-1295, Japan
Investigational Site Number : 2204

Himeji-shi, Hyōgo, 670-0063, Japan
Investigational Site Number : 3101

Salzburg, 5020, Austria
Investigational Site Number : 3102

Vienna, 1090, Austria
Investigational Site Number : 3201

Créteil, 94010, France
Investigational Site Number : 3202

Quimper, 2900, France
Investigational Site Number : 3203

Pessac, 33600, France
Investigational Site Number : 3204

Cesson-Sévigné, 35510, France
Investigational Site Number : 3205

Saint-Priest-en-Jarez, 42270, France
Investigational Site Number : 3206

Corbeil-Essonnes, 91100, France
Investigational Site Number : 3211

Chalon-sur-Saône, 71100, France
Investigational Site Number : 3213

Pau, 64000, France
Investigational Site Number : 3214

Angers, 49933, France
Investigational Site Number : 3216

Poitiers, 86021, France
Investigational Site Number : 3217

Paris, 75013, France
Investigational Site Number : 3218

Toulouse, 31059, France
Investigational Site Number : 3219

Dijon, 21079, France
Investigational Site Number : 3220

Rennes, 35033, France
Investigational Site Number : 3221

Epagny-Metz-Tessy, 74370, France
Investigational Site Number : 3222

Amiens, 80054, France
Investigational Site Number : 3301

Essen, 45147, Germany
Investigational Site Number : 3302

Landshut, 84036, Germany
Investigational Site Number : 3306

Hanover, 30161, Germany
Investigational Site Number : 3402

Reggio Calabria, 89133, Italy
Investigational Site Number : 3403

Novara, 28100, Italy
Investigational Site Number : 3404

Roma, 00161, Italy
Investigational Site Number : 3405

Terni, 05100, Italy
Investigational Site Number : 3410

Campobasso, 86100, Italy
Investigational Site Number : 3411

Palermo, 90146, Italy
Investigational Site Number : 3412

Ravenna, 48121, Italy
Investigational Site Number : 3413

Brescia, Lombardy, 25123, Italy
Investigational Site Number : 3415

Pavia, 27100, Italy
Investigational Site Number : 3601

Newcastle upon Tyne, North Tyneside, NE29 8NH, United Kingdom
Investigational Site Number : 3602

Salford, Manchester, M6 8HD, United Kingdom
Investigational Site Number : 3603

Truro, Cornwall, TR13LJ, United Kingdom
Investigational Site Number : 3605

London, London, City of, NW1 2PG, United Kingdom
Investigational Site Number : 3606

Taunton, Somerset, TA1 5DA, United Kingdom
Investigational Site Number : 3607

Liverpool, L7 8XP, United Kingdom
Investigational Site Number : 3608

Gillingham, Kent, ME75NY, United Kingdom
Investigational Site Number : 3611

Oxford, Oxfordshire, OX3 7LE, United Kingdom
Investigational Site Number : 3612

Leeds, LS9 7TF, United Kingdom
Investigational Site Number : 3613

Middlesbrough, North Yorkshire, TS4 3BW, United Kingdom
Investigational Site Number : 3617

Carlisle, Cumbria, CA2 7HY, United Kingdom
Investigational Site Number : 3618

Birmingham, B15 2GW, United Kingdom
Investigational Site Number : 3620

Harrow, HA1 3UJ, United Kingdom
Investigational Site Number : 3621

London, E1 2ES, United Kingdom
Investigational Site Number : 3623

Airdrie, North Lanarkshire, ML60JS, United Kingdom
Investigational Site Number : 3701

Barcelona, Barcelona [Barcelona], 8036, Spain
Investigational Site Number : 3712

Madrid, 28034, Spain
MedStar Georgetown University Hospital / Lombardi Comprehensive Cancer Center Site Number : 1208

Washington D.C., District of Columbia, 20007, United States
Mission Hope Medical Oncology Site Number : 1241

Santa Maria, California, 93454, United States
Northwell Health-Monter Cancer Center-North Shore University Hospital and Steven and Alexandra Cohen Children's Medical Center of New York (Schneider Children's Hospital)-North Shore Long Island Jewis Site Number : 1231

Lake Success, New York, 11042, United States
Orchard Heathcare Research Inc. Site Number : 1202

Skokie, Illinois, 60077, United States
Piedmont Cancer Institute, P.C Site Number : 1226

Atlanta, Georgia, 30290, United States
Reliant Medical Group Site Number : 1205

Worcester, Massachusetts, 01608, United States
SLO Oncology and Hematology Site Number : 1235

San Luis Obispo, California, 93401, United States
SUNY Upstate Medical University Site Number : 1221

Syracuse, New York, 13210, United States
Siouxland Regional Cancer Center dba June E. Nylen Cancer Center Site Number : 1220

Sioux City, Iowa, 51101, United States
The Ohio State University Site Number : 1236

Columbus, Ohio, 43210, United States
UT Medical Center Cancer Institute Site Number : 1237

Knoxville, Tennessee, 37920, United States
University of Alabama at Birmingham Site Number : 1230

Birmingham, Alabama, 35205, United States
University of Pittsburgh Medical Center-UPMC Hillman Cancer Center Site Number : 1210

Pittsburgh, Pennsylvania, 15232, United States
University of Washingtion Seattle Cancer Care Alliance Site Number : 1238

Seattle, Washington, 98109, United States

Conditions

Explore the condition pages connected to this study.

COLD AGGLUTININ DISEASE (CAD) COLD AGGLUTININ SYNDROME (CAS)