Hidden toll: how caring for family with inherited diseases affects health
NCT ID NCT01498263
Summary
This research study aims to understand how caring for family members with inherited diseases affects caregivers' stress and health. Researchers surveyed and interviewed over 5,500 caregivers and family members to learn how support networks help people cope. The study focuses on inherited conditions like Alzheimer's disease and metabolic disorders, examining how family relationships impact caregiver well-being.
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Contacts and locations
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Locations
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National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
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University of Memphis
Memphis, Tennessee, 38152, United States
Conditions
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