Survey reveals hidden toll on parents of children with chronic lung disease
NCT ID NCT07134387
Summary
This study aims to understand the long-term impact on parents and caregivers of children who had a chronic lung disease called Bronchopulmonary Dysplasia (BPD) as newborns. Researchers will survey 480 parents in seven countries using an online questionnaire to measure parental quality of life, family finances, and support needs. The goal is to gather knowledge to better support affected families, not to test a treatment.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Global Foundation for the Care of Newborn Infants (GFCNI)
RECRUITINGMünchen, Bavaria, 81379, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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