Parents share hidden toll of Child's chronic lung condition

NCT ID NCT07134387

First seen Nov 21, 2025 · Last updated Apr 21, 2026 · Updated 18 times

Summary

This study aims to understand how caring for a child with bronchopulmonary dysplasia (BPD), a chronic lung disease that affects premature babies, impacts parents' quality of life over many years. Researchers will survey 480 parents and caregivers in seven countries using an online questionnaire. The goal is to learn about the emotional, physical, and financial challenges families face to help improve future support systems.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Global Foundation for the Care of Newborn Infants (GFCNI)

    RECRUITING

    München, Bavaria, 81379, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.