New behavioral therapy aims to cut problem behaviors in kids with rare genetic condition

NCT ID NCT05829668

First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 28 times

Summary

This study looks at why children with Cornelia de Lange syndrome (CdLS) develop problem behaviors like aggression or self-injury, and tests a behavioral treatment to reduce them. About 20 children with CdLS and their families will take part. The treatment group will attend clinic visits for assessment and parent training, while a control group will be monitored over two years. The goal is to cut problem behaviors by 80% or more.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Kennedy Krieger Institute

    RECRUITING

    Baltimore, Maryland, 21205, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.