New drug avapritinib tracked in real life for Hard-to-Control mast cell disease
NCT ID NCT07255638
First seen Dec 15, 2025 · Last updated May 08, 2026 · Updated 13 times
Summary
This study follows about 80 people in Germany who have indolent systemic mastocytosis (ISM) and are starting avapritinib as part of their normal care because other treatments haven't controlled their symptoms well enough. Researchers will track changes in quality of life and other health measures for up to 24 months. The goal is to see how well the drug works in real-world settings and to learn more about the disease itself.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Charité Universitätmedizin Berlin, Klinik für Dermatologie, Venerologie und Allergologie
RECRUITINGBerlin, 10117, Germany
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HNO-Gemeinschaftspraxis Wiesbaden, GEKA Gesellschaft für Experimentelle und Klinische Atemwegsforschung mbH, Zentrum für Rhinologie und Allergologie
RECRUITINGWiesbaden, 65205, Germany
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Helios Universitätsklinikum Wuppertal
RECRUITINGWuppertal, 42283, Germany
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Katholisches Klinikum Bochum
RECRUITINGBochum, 44791, Germany
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MVZ Klinikum Deggendorf
RECRUITINGDeggendorf, 94469, Germany
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Universitats-Hautklinik Tubingen, Studienzentrum lmmundermatologie
RECRUITINGTübingen, 72076, Germany
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University Medical Center Goettingen - Georg August University of Goettingen
RECRUITINGGöttingen, 37075, Germany
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Universitätsklinikum Carl Gustav Carus Dresden Klinik und Poliklinik für Dermatologie
RECRUITINGDresden, 01307, Germany
Conditions
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