Major study launches to uncover hidden health risks in androgen insensitivity
NCT ID NCT04708431
First seen Jun 27, 2026 · Last updated Aug 14, 2026 · Updated 9 times
Summary
This study follows 650 people aged 8 to 99 with androgen insensitivity syndrome (AIS) to better understand their long-term health. Researchers will track hormones, bone density, heart health, metabolism, and tumor risk through regular check-ups and scans. No treatments are being tested; the goal is to learn how AIS affects the body over time and improve future care.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could provide a clearer picture of long-term health risks and optimal monitoring for people with androgen insensitivity syndrome.
- What could go wrong
- This is an observational study with no treatment being tested, so it will not directly lead to new therapies. Results may take years to emerge and may not apply to all forms of AIS.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States