Scientists launch major study to map rare 'Black Bone' disease
NCT ID NCT00005909
Summary
This study aims to deeply understand alkaptonuria, a rare genetic disease that causes arthritis, bone fractures, and tissue discoloration. Researchers will observe up to 300 patients over several years, using modern scans and tests to track how the disease develops and affects the body. The goal is to gather detailed information to better advise patients and prepare for future drug trials, but this study itself does not test a new treatment.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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