Rare stroke causes no longer overlooked: new italian network aims to end misdiagnosis
NCT ID NCT06935578
First seen Feb 28, 2026 · Last updated Apr 28, 2026 · Updated 11 times
Summary
This study creates a network of hospitals across Italy to better understand and diagnose rare cerebrovascular diseases (rCVDs) like CADASIL, Fabry disease, and Moyamoya. Researchers will collect health information from 500 patients to describe the diseases' features and natural history. The goal is to improve recognition and care for these often-missed conditions.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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ASST Grande Ospedale Metropolitano Niguarda
RECRUITINGMilan, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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ASST Melegnano Martesana
RECRUITINGMelegnano, MI, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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ASST di Cremona
RECRUITINGCremona, Italy
Contact Email: •••••@•••••
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Fondazione IRCCS Istituto Neurologico Carlo Besta
RECRUITINGMilan, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fondazione Istituto G. Giglio, Cefalù
RECRUITINGCefalù, PA, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Policlinico San Matteo, Pavia
RECRUITINGPavia, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Neurologia PO Levante Asl 2 Savonese
RECRUITINGSavona, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Neurologia Stroke Unit dell'Asst Rhodense
RECRUITINGRho, Mi, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Neurologia d'Urgenza e Stroke Unit dell'Ospedale di Pescara
RECRUITINGPescara, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Neurologia dell'Ospedale Sandro Pertini - ASL Roma2
RECRUITINGRoma, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ospedale "Spaziani" di Frosinone
RECRUITINGFrosinone, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ospedale Luigi Sacco, ASST Fatebenefratelli Sacco
RECRUITINGMilan, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ospedale Regionale Generale "F. Miulli", Acquaviva delle Fonti
RECRUITINGAcquaviva delle Fonti, BA, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Policlinico Tor Vergata, UOSD Stroke Unit
RECRUITINGRoma, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Stroke Unit Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano
RECRUITINGMilan, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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U.O. Neurologia, Ospedale Sant'Andrea, La Spezia
RECRUITINGLa Spezia, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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UO Neurologia degli Ospedali di Cesena e Forlì, Ospedale Bufalini Cesena ed Ospedale Morgagni-Pierantoni (Ausl della Romagna)
RECRUITINGCesena, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.