New study monitors rare calcium disorder to better understand its long-term effects
NCT ID NCT05227287
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is for people with autosomal dominant hypocalcemia types 1 or 2, rare genetic conditions that cause low blood calcium. Researchers will collect past and future health data from 95 participants to learn how the disease changes over time. The goal is to better understand the condition, not to test a treatment.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Aarhus University Hospital
Aarhus, 8200, Denmark
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Bone Research and Education Centre
Oakville, Ontario, L6M 1M1, Canada
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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CHU de Lille
Lille, 59000, France
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Centro Hospitalar Universitario de Lisboa Norte - Hospital de Santa Maria
Lisbon, 1649-028, Portugal
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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Departement d'Endocrinologie et Diabetes pour Enfants - AP-HP Hopital Bicetre
Le Kremlin-Bicêtre, Île-de-France Region, 94270, France
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Endokrinologikum Gottingen
Göttingen, 37075, Germany
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Erasmus MC
Rotterdam, 3015 GD, Netherlands
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Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano
Milan, Lombardy, 20122, Italy
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HCL Hopital Edouard Herriot
Lyon, Auvergne-Rhône-Alpes, 69003, France
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HCL Hopital Femme Mere Enfant
Bron, Auvergne-Rhône-Alpes, 69500, France
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Helsinki University Hospital (HUS) - The New Children's Hospital
Helsinki, 00290, Finland
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IRCCS Ospedale San Raffaele
Milan, Lombardy, 20132, Italy
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Indiana University (IU) School of Medicine - University Hospital
Indianapolis, Indiana, 46202, United States
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Mayo Clinic
Rochester, Minnesota, 55902, United States
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Nemours Children's Clinic
Jacksonville, Florida, 32207, United States
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Ohio State University Medical Center (OSUMC)
Columbus, Ohio, 43210, United States
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Osaka University Hospital
Osaka, 565-0871, Japan
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Physician's East Endocrinology
Greenville, North Carolina, 27834, United States
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Policlinico Universitario Campus Bio-Medico
Rome, 00128, Italy
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Royal Manchester Children's Hospital
Manchester, M13 9WL, United Kingdom
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Royal North Shore Hospital
Saint Leonards, New South Wales, 2065, Australia
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The University of Tokyo Hospital
Tokyo, 113-8655, Japan
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Universitaire Ziekenhuizen Leuven
Leuven, Flemish Brabant, 3000, Belgium
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University of California, San Francisco (UCSF) - Benioff Children's Hospital - Oakland
Oakland, California, 94609, United States
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