New registry aims to unlock secrets of rare bleeding disorder
Knowledge-focused
Recruiting now
This study creates a web-based registry for people with severe von Willebrand disease (sVWD), a rare bleeding disorder. Researchers will collect information from up to 400 participants about their medical history, symptoms, and lab results. The goal is to build a detailed databas…
Sponsor: VWD Connect Foundation • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:23 UTC