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Rare Disease Research, Llc

Clinical trials sponsored by Rare Disease Research, Llc, explained in plain language.

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  • DMD drug tested in wheelchair users – but trial stops early

    Disease control Terminated

    This study tested the safety of golodirsen (Vyondys 53) in boys and men with Duchenne muscular dystrophy who can no longer walk. Only 2 people took part before the trial was stopped early. Participants received weekly IV infusions for up to 96 weeks, with extra follow-up. The goa…

    Phase: PHASE4 • Sponsor: Rare Disease Research, LLC • Aim: Disease control

    Last updated Jun 27, 2026 12:03 UTC

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