Can a patient registry unlock a cure for Alpha-1?
Knowledge-focused
Recruiting now
This study creates a confidential registry of people diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and those who are carriers. The goal is to gather detailed patient data over time to help researchers understand how the condition progresses and to support the developmen…
Sponsor: Alpha-1 Foundation • Aim: Knowledge-focused
Last updated Aug 21, 2026 00:00 UTC