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KBG SYNDROME

Clinical trials for KBG SYNDROME explained in plain language.

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  • New program aims to ease burden on families of kids with rare diseases

    Symptom relief ENROLLING_BY_INVITATION

    This study tests a program called FACE-Rare, designed to support family caregivers of children with rare, life-limiting diseases. The program includes three sessions to help families prepare for future medical decisions and improve their quality of life. Researchers will compare …

    Matched conditions: KBG SYNDROME

    Phase: NA • Sponsor: Children's National Research Institute • Aim: Symptom relief

    Last updated Jun 27, 2026 09:00 UTC

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