INCONTINENTIA PIGMENTI

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Trials to join now! 1

Landmark study seeks to measure the hidden toll of rare skin conditions

Knowledge-focused Recruiting now

This study aims to measure the full burden—including physical, emotional, social, and financial impacts—of living with nine rare skin diseases. Researchers will enroll 900 patients and their families across France to complete detailed surveys about their daily lives and healthcar…

Matched conditions: INCONTINENTIA PIGMENTI

Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused

Last updated Mar 30, 2026 14:31 UTC

INCONTINENTIA PIGMENTI

Get alerted when new INCONTINENTIA PIGMENTI trials appear

Landmark study seeks to measure the hidden toll of rare skin conditions