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Pagon stephan syndrome

MONDO:0043162

Also known as: septo-optic dysplasia with digital anomalies

1 clinical trial for this condition and its sub-types.

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Broader categories

Disease (680) Nervous system disorder (231) Hereditary disease (176) Brain disorder (125) Central nervous system disorder (107) Endocrine system disorder (72) Hypogonadism (45) Syndromic disease (25) Hereditary endocrine growth disease (24) Hypogonadotropic hypogonadism (18)

Not yet finished but already full! 1

Pituitary patients followed for years to uncover key outcomes

Knowledge-focused Ongoing

This study follows 1500 patients with pituitary gland disorders to see how they fare over time, whether treated with medication, surgery, or just monitoring. Researchers will track tumor regrowth after surgery to find clues that predict recurrence. The goal is to learn, not to te…

Sponsor: University of Alberta • Aim: Knowledge-focused

Last updated Jun 27, 2026 11:01 UTC