New toolkit boosts disclosure of sickle cell trait in newborns

NCT ID NCT05387564

First seen Jan 08, 2026 · Last updated May 09, 2026 · Updated 23 times

Summary

This study tested a set of tools to help pediatric doctors better document and discuss sickle cell trait (SCT) results with families. SCT is often found during routine newborn screening, but many doctors fail to record or share this information. The study involved 114 healthcare providers and measured how acceptable and useful the tools were. The goal was to improve communication and ensure families know their child's SCT status.

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Contacts and locations

Locations

  • Nemours Children's Hospital, Delware

    Wilmington, Delaware, 19803, United States

Conditions

Explore the condition pages connected to this study.